It's funny you know.. years I have had people try to talk me in to the surgery and now I am convinced that it may be my only option, I am having people talk me out of it
I am truly not trying to talk you out of it, but I am trying to let you know that this is the biggest "exam" of your life and you must swat and learn and understand everything about it before taking it on board.
I would be making an appointment to see three specialists once you have the relevent and latest CT and MRI scans. Also write a list of questions and ask the three of them. Google! Talk to people who ahve been through it. DO not think for one second this will either work or not. You must have a full understanding......and expect the worse, then anything that does go well will be a most welcome bonus. Its REALLY hard work, but you can do it if you know what to expect, otherwise you may fall into a crumbling heap 6-8 weeks down the track. I cried and cried for months - probably close to 24 months!!! These days I know my limits, but back when I was recovering AND learning the new limits I had it was really really mentally painful and difficult.
I wish you the best of luck
Yep I get what you are saying and getting surgery is something I have been afraid of for years. The things you are speaking about are the things that had me too scared to go through with surgery in the past. They are making me nervous again it's not hard to talk a wuss like me out of it..intentionally or not.
I have an appointment on the 13th with the orthopedic guy and I will also make an appointment with the neurosurgeon that you suggested tomorrow.
Pugg, if you have got to the stage where YOU think surgery is your only option, then go for it, have faith in your Doctors and I'm sure they will explain the surgery every step of the way so you are clear on all points. Take a list of questions with you, keep a pad handy and write them down each time you think of something. Good luck and all the best for the 13th.
i really don't want to rain on your parade here... i just remember how totally hyped my mum was about the surgery, she was promised the world, and ended up so hurt, in both body and mind. she is still on morphine and similar narcotics that she tries to only take when she can't bear the pain any longer, so it will keep working for her. even morphine doesn't really stop all of her pain.
so every time you move about, imagine what it will be like to have no flexibility at all.. you may think your movement is already restricted, but.... try using one of those clamp style things with a long handle (no idea what they are called, my mum calls her's 'Henry') to pick things up, make sure all your shoes are the sort you can easily step into, and use that 'Henry' to get them off again. forget stockings, or socks. forget pants, until you become proficient at using a tool to get them up, or have someone do it for you. after that initial 2 hours in the morning, imagine waiting till the next morning, when your carer comes, for her to be able to attend to some of your more personal hygeine.
the therapists do train you in how to roll off the bed to get up, how to lever yourself from chairs etc.. just please make sure you really know what you are letting yourself in for.
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