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Thread: I've Decided to Get Surgery

  1. #61
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    Quote Originally Posted by Cleasanta View Post
    nope...but there is a risk to your cauda equina nerves (runs from about L3 and down), which controls sexual function, peeing and pooping!
    Ah yes you are very correct here Clea....after 5 yrs I just take it for granted that I head off to the loo every couple of hours as I have NO feeling that requires me to pee, this is a direct result of the surgery at L4/5 & L5/S1.......a VERY valid point Clea, and one I had totally forgot to mention
    SPR fosters:Rowland, Matrix, Mia, Arizona, Romeo, Wrinkles, George, Molly, Su Lin, Ellie, Charlie, Charlotte, Lulu, Montana http://www.sharpeirescue.com.au

  2. #62
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    Quote Originally Posted by zen View Post
    i wish you luck as well..

    but.... and i am sorry, but i do hope you have done a good deal of research, and thought very long and hard on this decision. my mother had similar done to her spine, she has lost a great deal of flexibility, and a good deal of her independence, and seems to have even more pain than before the 13 hour operation. yes, she was quoted 6-8 hours. she almost did not wake up afterwards. this is not something i would ever think of doing myself.
    Yep it happens and not uncommon!
    SPR fosters:Rowland, Matrix, Mia, Arizona, Romeo, Wrinkles, George, Molly, Su Lin, Ellie, Charlie, Charlotte, Lulu, Montana http://www.sharpeirescue.com.au

  3. #63
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    Quote Originally Posted by puggerup View Post
    Gosh Zen.. your poor Mum
    I get the toilet paper thing.. I can't "twist" around for the first 2 hours of the morning either
    See? I am already stuffed, surgery is my only chance, the worst that could happen is no improvement.
    Actually no this is not the worst that can happen. You could end up in WORSE pain, some people do
    SPR fosters:Rowland, Matrix, Mia, Arizona, Romeo, Wrinkles, George, Molly, Su Lin, Ellie, Charlie, Charlotte, Lulu, Montana http://www.sharpeirescue.com.au

  4. #64

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    It's funny you know.. years I have had people try to talk me in to the surgery and now I am convinced that it may be my only option, I am having people talk me out of it

  5. #65
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    I am truly not trying to talk you out of it, but I am trying to let you know that this is the biggest "exam" of your life and you must swat and learn and understand everything about it before taking it on board.

    I would be making an appointment to see three specialists once you have the relevent and latest CT and MRI scans. Also write a list of questions and ask the three of them. Google! Talk to people who ahve been through it. DO not think for one second this will either work or not. You must have a full understanding......and expect the worse, then anything that does go well will be a most welcome bonus. Its REALLY hard work, but you can do it if you know what to expect, otherwise you may fall into a crumbling heap 6-8 weeks down the track. I cried and cried for months - probably close to 24 months!!! These days I know my limits, but back when I was recovering AND learning the new limits I had it was really really mentally painful and difficult.

    I wish you the best of luck
    SPR fosters:Rowland, Matrix, Mia, Arizona, Romeo, Wrinkles, George, Molly, Su Lin, Ellie, Charlie, Charlotte, Lulu, Montana http://www.sharpeirescue.com.au

  6. #66

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    Yep I get what you are saying and getting surgery is something I have been afraid of for years. The things you are speaking about are the things that had me too scared to go through with surgery in the past. They are making me nervous again it's not hard to talk a wuss like me out of it..intentionally or not.

    I have an appointment on the 13th with the orthopedic guy and I will also make an appointment with the neurosurgeon that you suggested tomorrow.

  7. #67
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    Pugg, if you have got to the stage where YOU think surgery is your only option, then go for it, have faith in your Doctors and I'm sure they will explain the surgery every step of the way so you are clear on all points. Take a list of questions with you, keep a pad handy and write them down each time you think of something. Good luck and all the best for the 13th.

  8. #68
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    Quote Originally Posted by puggerup View Post
    Gosh Zen.. your poor Mum
    I get the toilet paper thing.. I can't "twist" around for the first 2 hours of the morning either
    See? I am already stuffed, surgery is my only chance, the worst that could happen is no improvement.
    as someone else has already commented, worse -can- happen, and does to lots of ppl who take this option. 2 hours is nothing compared to the rest of your life.

    i really don't want to rain on your parade here... i just remember how totally hyped my mum was about the surgery, she was promised the world, and ended up so hurt, in both body and mind. she is still on morphine and similar narcotics that she tries to only take when she can't bear the pain any longer, so it will keep working for her. even morphine doesn't really stop all of her pain.

    so every time you move about, imagine what it will be like to have no flexibility at all.. you may think your movement is already restricted, but.... try using one of those clamp style things with a long handle (no idea what they are called, my mum calls her's 'Henry') to pick things up, make sure all your shoes are the sort you can easily step into, and use that 'Henry' to get them off again. forget stockings, or socks. forget pants, until you become proficient at using a tool to get them up, or have someone do it for you. after that initial 2 hours in the morning, imagine waiting till the next morning, when your carer comes, for her to be able to attend to some of your more personal hygeine.

    the therapists do train you in how to roll off the bed to get up, how to lever yourself from chairs etc.. just please make sure you really know what you are letting yourself in for.

  9. #69
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    Quote Originally Posted by Shar Pei Rescue Victoria View Post
    Ah yes you are very correct here Clea....after 5 yrs I just take it for granted that I head off to the loo every couple of hours as I have NO feeling that requires me to pee, this is a direct result of the surgery at L4/5 & L5/S1.......a VERY valid point Clea, and one I had totally forgot to mention
    Oh I knoooow all about this one Amanda. I have permanent damage to my cauda equina nerves and lets just say...I deal with lots of stuff too due to this. Cauda Equina syndrome is not something to mess about with...unfortunately the doctors do not mention this as a complication to spinal surgery...sigh

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